Some 120 patients recently diagnosed with lung cancer (within six months) completed questionnaires, with a further 24 taking part in interviews.
The results showed that only 2 per cent patients had researched their own symptoms online, while 18 per cent reported a relative had done this on their behalf. Relatives used the information to encourage the patients to seek further medical diagnosis and to check doctor’s advice. However, most encountered problems retrieving and assessing online information.
Julia Mueller said: “Our findings highlight the importance of relatives in triggering help-seeking for lung cancer symptoms and that online information contributes to this process. Being able to easily access appropriate information online could be crucial in getting people to the doctor earlier – which will improve recovery and survival rates.
“We plan to develop and evaluate a website that will provide information for those experiencing lung cancer symptoms that have not gone to their doctor for a diagnosis. This will involve tailoring information to the individuals own circumstances, such as age and gender, and whether they are searching for themselves or behalf of someone else.”
The study was funded by the Medical Research Council.